The 20 Best Tuberous Sclerosis Complex Doctors Near Me in Saint Louis, MO

Find the Top Tuberous Sclerosis Complex Experts and Specialists

The 20 Best Tuberous Sclerosis Complex Doctors near Saint Louis, MO

Last Updated: 02/22/2026

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MediFind found 10 doctor with experience in Tuberous Sclerosis Complex near Saint Louis, MO. Of these, 8 are Experienced and 2 are Advanced.

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10 providers found
    Himanshu Kaulas
    Advanced in Tuberous Sclerosis Complex
    Neurology | Pediatric Neurology
    Advanced in Tuberous Sclerosis Complex
    Neurology | Pediatric Neurology

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Himanshu Kaulas specializes in epilepsy and seizure disorders in pediatric patients. He offers diagnosis of and treatment for epilepsy, evaluation for ketogenic diet, and identification of candidates for epilepsy surgery. He interprets routine, continuous video, and invasive electroencephalograms (EEGs), and consults with other child neurology specialists on issues such as refractory epilepsy and suitability for epilepsy surgery. Dr. Kaulas strives to provide personalized care in his practice by ensuring patients have sufficient time to voice their concerns. Dr. Kaulas is an assistant professor in the Department of Neurology, Division of Child Neurology, at Saint Louis University School of Medicine. He is a member of both the American Epilepsy Society and the Child Neurology Society. Dr. Kaulas is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Seizures, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Generalized Tonic-Clonic Seizure.

    Kathryn Elkins
    Experienced in Tuberous Sclerosis Complex
    Neurology | Pediatric Neurology
    Experienced in Tuberous Sclerosis Complex
    Neurology | Pediatric Neurology

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Kathryn Elkins is a pediatric neurologist who cares for patients from birth to 18 years old. She specializes in diagnosing and treating general neurological diseases, epilepsy, and genetic epilepsy. She provides EEG interpretations and ketogenic diet recommendations to help patients identify and manage their epilepsy, respectively. Dr. Elkins' mission is to provide high-quality, comprehensive neurological care to patients and their families, ensuring they have the most up-to-date treatment options and proper education to make informed medical decisions. Dr. Elkins is an assistant professor of Pediatric Neurology in the Department of Neurology at Saint Louis University School of Medicine. She is a member on the education committee for the American Epilepsy Society, and a reviewer for the Journal of Child Neurology and Child Neurology Open. Fun fact: Dr. Elkins loves cooking, which feeds her interest in the ketogenic diet as an epilepsy treatment. Dr. Elkins is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. Her top areas of expertise are Primary Lateral Sclerosis, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Seizures.

    Advanced in Tuberous Sclerosis Complex
    Advanced in Tuberous Sclerosis Complex

    Office

    1 Childrens Pl Ste D, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Michael Wong is a Neurologist in Saint Louis, Missouri. Dr. Wong is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Memory Loss, and Seizures.

    Learn about our expert tiers
    Experienced in Tuberous Sclerosis Complex
    Neurosurgery
    Experienced in Tuberous Sclerosis Complex
    Neurosurgery

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Jarod Roland is a Neurosurgery provider in Saint Louis, Missouri. Dr. Roland is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Epilepsy, Gliomatosis Cerebri, Astrocytoma, and Brain Tumor.

    Experienced in Tuberous Sclerosis Complex
    Experienced in Tuberous Sclerosis Complex

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Jennifer Griffith is a Neurologist in Saint Louis, Missouri. Dr. Griffith is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. Her top areas of expertise are Neurofibromatosis, Lissencephaly 1, Cerebral Hypoxia, and Seizures.

    Experienced in Tuberous Sclerosis Complex
    Experienced in Tuberous Sclerosis Complex

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Oleg Lobanov is a Neurologist in Saint Louis, Missouri. Dr. Lobanov is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Dravet Syndrome, Seizures, Epilepsy in Children, and Generalized Tonic-Clonic Seizure.

    Experienced in Tuberous Sclerosis Complex
    Experienced in Tuberous Sclerosis Complex

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Amjad Samara is a Neurologist in Saint Louis, Missouri. Dr. Samara is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Wolfram Syndrome, Optic Nerve Atrophy, Metastatic Brain Tumor, and Multiple Sclerosis (MS).

    Experienced in Tuberous Sclerosis Complex
    Experienced in Tuberous Sclerosis Complex

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Experienced in Tuberous Sclerosis Complex
    Experienced in Tuberous Sclerosis Complex

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Fabio Nascimento is a Neurologist in Saint Louis, Missouri. Dr. Nascimento is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. His top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Seizures, and Memory Loss.

    Experienced in Tuberous Sclerosis Complex
    Experienced in Tuberous Sclerosis Complex

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Renee Shellhaas is a Neurologist in Saint Louis, Missouri. Dr. Shellhaas is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis Complex. Her top areas of expertise are Epilepsy in Children, West Syndrome, Seizures, and Spasmus Nutans.

    Showing 1-10 of 10

    Last Updated: 02/22/2026

    What is the definition of Tuberous Sclerosis Complex?

    Tuberous sclerosis complex is a genetic disorder characterized by the growth of numerous noncancerous (benign) tumors in many parts of the body. These tumors can occur in the brain, kidneys, heart, skin, and other organs, in some cases leading to significant health problems. Tuberous sclerosis complex also causes developmental problems, and the signs and symptoms of the condition vary from person to person.

    When should I see a Tuberous Sclerosis Complex doctor near Saint Louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tuberous Sclerosis Complex doctor near Saint Louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tuberous Sclerosis Complex doctors near Saint Louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tuberous Sclerosis Complex doctors near Saint Louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tuberous Sclerosis Complex doctor near Saint Louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis Complex doctor search results page. 

    Why is it important to get a second opinion from a different Tuberous Sclerosis Complex doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tuberous Sclerosis Complex doctor near Saint Louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tuberous Sclerosis Complex doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis Complex doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tuberous Sclerosis Complex doctors near Saint Louis, MO?

    Look for the filter feature on the left side of the Tuberous Sclerosis Complex doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tuberous Sclerosis Complex doctor that offers video calls?

    Look for the filter feature on the left-side of the Tuberous Sclerosis Complex doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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